In the Eye

I saw a new patient today at my clinical. Her referral listed a simple diagnosis, but it was apparent from the moment she walked in that she’d be anything but simple.

She was near to my age, lived near me and well, the more I read on her chart, the more I found that we had in common. This girl who was so much like me on paper, was also obviously in a lot of pain. She later told me that on a scale of 0 to 10, her pain was a 30. And you know what? I believed her. There are many people who say their pain is a 12 out of 10, and it’s not that I don’t believe them, but I often wonder if I could tolerate their pain. You know? I wonder if their 10 is the same as my 10.

Not this girl.

I looked this girl in the eye and I saw bits of myself. I saw sadness and defeat. I saw hope that was dwindling, but still present. But I also saw pain that if I’m lucky, I will never understand. I saw hardship that she doesn’t deserve, that I’m not sure she can handle, that I’m not sure anyone can handle.

I wanted to take her hand and tell her all about the chronic pain resources I know, about all the wonderful people on the internet, but I couldn’t. I couldn’t for a number of reasons, but mostly because I was so completely beside myself that I couldn’t hardly utter any words besides the ones I have rehearsed in my head hundreds of times for patient interviews.

I looked this girl in the eye, I heard about her pain and I wanted to cry. I wanted to cry for her. Because I saw the fear in her eyes, and I just sat there, feeling impotent. Feeling helpless. I can’t help this girl. It’s entirely possible that no one can, but I’m going to have to be one of the first to break that reality to her.

The more I’ve thought about this girl, the more I’ve considered what happened today, what she told me, what I heard and saw, the more I understand some of the reactions I get from people, from doctors, from my own family. I saw someone suffer today. I had someone tell me that she’d do anything to make her pain stop, I had someone say to me sentences that I’ve said to others, that I’ve written here in my most desperate hours.

I understand things now.

I understand why people walk away from those in pain. It’s terrifying to watch someone shrink from pain. And it’s soul crushing to not be able to do anything for it.

I understand why doctors fire patients, why some respond to chronic pain patients the way they do. It’s horrible to see something you don’t know much about, that you can’t fix. That no book or lecture can ever help you understand the realities of.

I understand why family and friends cry for those who are suffering. It’s because sometimes it’s all you can do.

I am not saying that I understand this girl’s pain, because if I put my pain on the same scale as hers, even tonight when it’s relentless and gnawing, I don’t think that it would hold a candle to hers. But I understand a lot of what she’s feeling right now, and some of what she’s gone through and will soon face.

And for the first time, I understand how it feels to watch someone suffer. I understand how helpless you feel when you stare pain in the eye and have no answer, no help.

I understand now.

I almost wish that I didn’t.

9 Responses to “In the Eye”

  • This is so sad and true…I hate it. It makes me sad too.

    [Reply]

  • Katy:

    I can’t say that I understand, but I do know what it’s like to harden myself–to walk away because it’s too much to handle. For me, it was students–students in gangs who didn’t want to be saved. This, what you’re going through, I think is worse. I wish I had wisdom or even something smart to say, but I don’t.

    [Reply]

  • Maybe you are in the right place at the right time for her. Someone who understands is worth their weight in gold.

    [Reply]

    Katie Reply:

    @Suebob, I hadn’t even considered that. Maybe you’re right.

    [Reply]

  • I think helping other people also helps you grow and deal with your stuff. At least that is what I found when I worked as a social worker. And I think the best gift you can give someone else is just to BE THERE for them, even if there is really nothing else you can do for them.

    You will be a wonderful, compassionate healer because of your experiences.

    [Reply]

  • I think you’re in the right place there. You seem to be *really* caring for the patients. I admire that.
    I’ve experienced similar things (not the headache, but the patients). I understand your feelings, I’ve felt the same way at the beginning of my studies. I think in this medical “business” we have to respect one thing when it comes to pain scales: a 10 is a 10. Everyone has a different way to experience pain and it’s levels. I know, it’s easier said than done…

    [Reply]

    Katie Reply:

    @Deanie, It’s never that I don’t think that they’re at their 10 out of 10, that’s not it at all. I just sometimes wonder what their 10 is sometimes. With this girl, I didn’t wonder, hell, I didn’t want to wonder.

    And it’s not that people who can manage their pain well shouldn’t be taken seriously (I’m one of those, most of the time no one believes I’m in pain because I’m pretty functional), it just always makes me wonder how our 10s compare.

    [Reply]

  • The other thing you understand is about not being a “good” patient. You know – a patient that presents with a problem, you know the solution, administer it and they get better. I think many medical people get tired and somewhat resentful at people who don’t get better on a normal schedule. It’s human nature to want simple, tidy solutions – “See, I fixed it!” It’s tougher to deal with the difficult, the mysterious and the unimproving.

    [Reply]

  • dani:

    I love you. I don’t know you, but I honestly love you for this entry. Thank you. Sometimes my doctors don’t get it and I suspect it’s because they haven’t had the kind of pain that gnaws at your soul. Thank you for writing this. It brought tears to my eyes…but it also gave me hope. I don’t know why or what for. But even though I just woke up from a nap and am already in pain, those dark thoughts have agreed to retreat to the back and hide in the darkness of my mind for now.

    I wish the cognitive fog wasn’t so bad today so I could be all eloquent and shit, but I hope you get what I’m saying. Thank you again.

    [Reply]

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About the Brain
Welcome! I'm Katie, a 28 year old, full-time graduate student who just happened to have brain surgery in November of 2007 to give my ginormous brain a little more space. This blog chronicles my daily life, from relentless headaches to being a doctor's wife. Sit down, get comfortable and stay for a while.
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