Comments on: Facing It, Again

By: NTE

NTE — Fri, 30 Jul 2010 17:55:14 +0000

Oh man, I’m so sorry that you’re having a hard time. I wish you all the luck in the world tracking down the doctor that fits with you. I know it’s hard work, but it has to be worth it, right? Just to find someone who tries. Who you know is doing their best. It’s really not too much to ask for. Hope you are finding relief soon!

By: Dana Marton

Dana Marton — Thu, 29 Jul 2010 19:12:53 +0000

I believe that you have to find a doctor that “fits” w/ you, and that is a huge priority. I had a rheumatologist that was voted Atlanta’s Best, and he decided to ignore all my medical records and take me off my meds so he could actually see for himself my joints swell! WTF! How is that one of Atlanta’s Best DOCS?! It took me 5 months to find another doctor, so I was screwed for a while, and yes my joints did swell, but unfortunately not for him to see…I went to the ER to have them make a note of it for my new rheumy, who I am still seeing and love very much!!! Keep looking, and you will find that neurologist that “fits” w/ you just perfectly!!! I just hope that you don’t have to suffer like I did in the process of searching!

Check out my story in my blog post, “Connnecting the Dots.”

http://gavertarm2bambidextrous.blogspot.com/2010/07/connecting-dots.html

Blessings,
Dana

By: breakdown, go ahead and give it to me « lipstick, perfume and too many pills

Thu, 29 Jul 2010 17:21:15 +0000

[...] Katie at the Overflowing Brain writes about the very real difference doctors can make in a patients life — or not. [...]

By: Amanda

Amanda — Thu, 29 Jul 2010 16:56:28 +0000

Hope is there. Close your eyes and embrace it. Take comfort in it. It’s there . You’ll be okay. Prayers, sweet one.

By: Hillary

Hillary — Mon, 19 Jul 2010 05:14:08 +0000

Hey
This is my first comment here. I stumbled on your blog and something about it really caught my attention. I have been reading for a few months now but never really knew what to say. I suffer from chronic migraines. The last few nights I’ve been having a severe one and I could not stop thinking about you.

I have not back-read on all of the treatments you have tried but I thought maybe I would throw a few things out that you have probably heard before. I just want to help you so bad because I know how awful and crippling a headache is.

Have you tried a chiropractic adjustment?
Acupuncture?
Hot stone or deep tissue massage?
I have noticed that my worst migraines are always around my ‘monthly gift’. I don’t know if the loss of blood has anything to do with it. But maybe get your iron levels checked?
I read that low blood pressure may be a suspect? Maybe try a no or low salt diet?
Also what about exercise? It increases blood flow?

I am not sure I just want to give you some suggestions.
I know that when I get my awful awful headaches I can feel the blood pumping through my temples. When I apply huge amounts of pressure on my temples or on my eyes it helps.

This is me really going out on a limb. I really really hope you find a doctor you can trust and who is also willing to help you and put in the extra time to research and find solutions that may help you out.

By: Katie

Katie — Sat, 17 Jul 2010 15:32:48 +0000

@Katy, See, and that's it. I don't expect any doctor to know all the answers to anything. I live with a doctor, I know that there's just no chance of that. But, I expect a doctor to try to figure some things out for me. I expect a doctor to go home and do some research, maybe not the first time they meet me, maybe not a ton of work, but some research to make my care better, much like how my husband does almost every night for his patients. I know he's not the only one who goes home and tries to learn more for his patients, but so far I've found maybe one doctor who has ever done that. I'm willing to deal with not warm and fuzzy if the doctor is good and focused on my care.

By: Katy

Katy — Sat, 17 Jul 2010 04:29:00 +0000

I don’t think I’ve ever put this in writing before, but my highly recommended OBGYN never sat right with me. And he missed the rather obvious fact that my child was dying inside of my uterus. Now days, I don’t waste five minutes with a doctor that I don’t feel warm and fuzzy about–even if that means looking around for a while. Also, I’ve fully accepted that I am Charlie’s primary person and everyone else is just supporting me in that role. I don’t even try to explain myself any more–I just say, “bad vibes” and move on. Call me crazy, but when you’ve ignored your gut and gotten burned–well–I’m not going there again.

By: mommabird2345

mommabird2345 — Fri, 16 Jul 2010 17:26:29 +0000

I’m so sorry that this new Dr. hasn’t been much help. I really do hope you find one that not only you like & are comfortable with, but also one that has the answers that you need. Hugs.

By: Jamie

Jamie — Fri, 16 Jul 2010 14:46:46 +0000

I don’t want you to give up on the brace quite yet. As you’ve said before you haven’t fit into any “norm” up until this point so maybe you still won’t. It’s possible your normal is feeling better after two days of wearing the brace. It’s too soon to tell. And because you haven’t fit into the norm I don’t think you can ever give up hope. The more you read and the more you research you might happen upon some weird and random thing that helps you out. Don’t give up hope! You’re just having a bad day and we all have those. AHA! You’re NORMAL!

By: GreenInOC

GreenInOC — Fri, 16 Jul 2010 04:55:33 +0000

@Katie,

I missed that tidbit, my eyes were probably still crossed from being so irritated by the first post!!!

Still, I would think that your migraine may have been aggravated by something else so if it were me and if you were asking me (which it’s not and you aren’t!), I’d keep trying but keep a VERY detailed log of time you woke up, what you ate, when you ate, what you drank, when you drank, abdomen binder time on/off and a log of how bad the pain is with each entry.

OMG – I’m still pissed!!!