How it went
As usual, I overpanicked about today.
That is not to say that I’m not in a rather spectacular amount of pain right now (because I am), but just that (so far) none of the things I was worried about really went wrong.
The neurosurgeon only ended up doing one patch instead of two. He did this one a little higher on my spine than the last one, had me lie in different positions to distribute the blood further up and down my spine. Not to mention that he was able to make me hurt from my thighs to my brain, so reason says he was able to add pressure throughout my spinal cord, hopefully closing up the leaks and ending these 7 months of hell.
The procedure took considerably longer this time than the 20 minutes it took last time. The anesthesiologist didn’t want to give me Versed, he prefers Propofol, which makes me wildly ill (which has been proposed because there’s a correlation between egg allergies and Propofol). When I told him this, he insisted that it was surgery that made me sick, not Propofol. And while he may be correct, if the Versed worked fine last time, why change it now? I don’t think he appreciated how close I was to a nervous breakdown.
In the end, I won. He pushed Versed, which didn’t do a whole lot this time, so then he pushed more. And more. And holy God, I was higher than a damned kite, but simultaneously really sleepy.
I was barely awake for most of it, but I distinctly remember them arguing about what level they had the needle inserted at because if they counted from the bottom of my spine up, they were one lower than they were if they counted from the top down. I finally managed to string together a sentence of words to explain that I have an extra lumbar vertebra (don’t act surprised, OF COURSE I DO) and that ended that hullaballoo.
Then the IV they were supposed to pull the blood from didn’t work, so they had to start another one, while I was lying face down, with my arms hanging at my sides.
But in the end, they got what they needed, they pushed a ton of blood in, they made it hurt like it was supposed to, and we should know soon if it worked.
He said that by Friday I may notice a difference in the headache. This is both astoundingly exciting and simultaneously terrifying. On the one hand, it could be fixed, like now. On the other, we might know, like now, that our only real treatment plan doesn’t work (see also: square one).
And so for now I’m just going to stick with the wishful thinking. And wallowing in a tiny bit of painful self-pity.








Welcome! I'm Katie, a 28 year old, full-time graduate student who just happened to have brain surgery in November of 2007 to give my ginormous brain a little more space. This blog chronicles my daily life, from relentless headaches to being a doctor's wife. Sit down, get comfortable and stay for a while.











Hoping, hoping, hoping this helps with the blasted headache. Take care.
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I really hope it works! I am sending positive thoughts your way! I will be in a similar situation soon, we will be trying Remicade as a last ditch effort for the arthritis. If it works it could be my miracle drug but if it doesn’t… I can’t even let myself go there right now. There are no other options after TNF blockers. (And also I am totally freaking out about all the serious side effects those drugs can cause!) Anyway, I am really, really cheering you on and praying that this is the answer because no one deserves to have their life controlled by pain.
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I think I’ll do a little wishful thinking right along with you, if you don’t mind.
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There it is again…hope. Gotta love it.
Don’t you love when your doctor/surgeon/etc. try to tell you it was the surgery that makes you sick. That’s what they told me after a simple lithotripsy when I was puking my guts out every 25 minutes. Turned out to be acute renal failure, complete with dialysis and nine days in ICU.
So glad you are your own advocate. Very glad indeed.
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I can’t wait to see if this works. Everything is crossed that it does
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I hope the headache is relieved by this!
(Why was your anesthesiologist such a D?)
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Katie, I am so sorry you had to go through so much pain. I am hoping so much for you that this works. I hope today that you feel better from the procedure. I am keeping my fingers crossed for you.
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I have a 6th lumbar vertebra TOO!!!! We’re special!
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OUCH!!! And when will these doctors learn that we know what is best for us???? Sheesh!
xoxomo
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