Orange Dots

When I was in high school, my mom and I moved into a house, just the two of us. My older (perfect) sister was away at college and my mom and I had been living at my grandparents while we waited to get enough money to pay and for the time it took to build it. It wasn’t a mansion by any means, but it was our home.

The day of our walkthrough, one of the builders came and every time we found something that needed repair or work, he stuck and orange dot on it. By the end of the walkthrough, we had amassed a small army of orange dots all over the house and were assured they’d be fixed shortly.

We were finally able to move in a week or so later and found that all the orange dots were still there. Not one flaw had been fixed, not one dot removed, but we were so ready to be in our new home that we ignored them, assuming they’d be fixed later.

Over the course of the 5 years we lived there, the house never got fixed. The stickers gradually faded until they were so light that you had to look closely to see that they were once orange. We had to peel them all off when we sold that house a few years ago, revealing all our home’s little blemishes, shortcomings.

Sometimes when I think about that house and those dots, I feel like my life has those same orange dots all over it. Sure, I don’t need paint or spackle, I don’t need a bolt tightened or a cabinet straightened, but I have flaws. Flaws that desperately need repair.

There is an orange dot on my schoolwork, on my energy to complete it. I’m still passing everything (that I know of), but my ability to push through, to keep trying, to not give up, is wearing down. I don’t know what the fix is, I don’t know how to repair this, but I see the problem and maybe that’s the first step.

There is an orange dot on our apartment. Even while on vacation, I haven’t been able to keep the mess contained. And so much of what I can’t do, my husband is forced to. He picks up so much of my slack, does so much more than he really should have to. And even still, it’s a stye.

There is an orange dot on my relationship with my family. There are members of my family that I still cannot bring myself to speak to, ones who I actively go out of my way to avoid seeing. There are others that I haven’t found the courage to tell all my truths to, and many of those truths are ones I’ve been dying to scream out for a very long time.

There is an orange dot on my marriage. We have a good marriage, I’m not complaining. But we have problems that our peers may never encounter. Having one half of a marriage be chronically in pain, chronically ill, chronically (gulp) disabled, isn’t just hard for the one in pain. As I’ve learned from finally sitting down and listening to Slappy is that it is intensely challenging to the “normal” one too. And it’s not made easier when the normal one has 80-90 hour work weeks and himself is run ragged all the time. It’s hard to make time for each other, it’s hard to find energy. I have a million excuses, but the bottom line is that it needs work.

There’s a huge orange dot over my mind, my sanity. I bear such guilt that sometimes I think I might sink right through the ground from its tremendous weight. I bear guilt for what I’ve done to myself, to other people, to my family and friends. I bear guilt for not being able to do everything I sign up for, for not being able to be everything I want to be for other people. For not being supportive enough, for not being happy enough.

There is an orange dot on my health whose size rivals the sun. I am doing everything I can to make the repair there, I will walk to the end of the earth if it means my health gets better, if it means I get to be me again. I have never wanted anything as much as I want to be without pain. Not just for me, but for my husband, for my mom and dad, for the people who rely on me.

There is an orange dot that is starting to show in my spirit. In my belief that things will get better. Doubt has crept in, it has invaded the back corners of my mind and it’s hard to push away. I struggle to stay in the present and not think about the rest of my life and how I’ll ever manage if things stay on the course they’re on now.

The more I look around, the more I see those orange dots stuck to so much of my life. And I’m fighting as hard as I can to find them all, to figure out what needs to be fixed, before they fade.

Before they fade into the background and things stay broken for good.

12 Responses to “Orange Dots”

  • Oh honey, what I wouldn’t give to help you remove one of your dots. <3

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  • sandi:

    wow… we need to talk.

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  • I want to give you something. A shiny gold star. A shiny gold star for courage. It takes real strength to honestly take measure of things in your life that could use improvement. I’m sitting here ticking off things in my head that I need to work on. Thank you for the inspiration Katie.

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  • I can identify so closely with this post. There are orange dots too for me. My health, and my marriage being the two most important ones… honestly for almost the very same reasons.

    HUGS

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  • infiniteknot:

    I can totally relate to this post. I have CDH/migraine and I struggle to get more done than work. I can keep up with the housework, barely. And keeping my marraige well is a priority. But other things have fallen apart. I hope that you get well b/c this feeling is not good.

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  • My best friend has chiari malformation and is looking at having brain surgery this summer. I stumbled upon your blog and I am so glad I did…I hope she comes here to read your struggles because I think she could really benefit from your words. Thank you for your honesty.

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  • Hi! I found out 7 years ago that I have chiari malformation. I have Fibromyalgia and CFS, they were testing me to make sure that I didn’t have MS or Lupus and that’s how they found it. They haven’t mentioned anything about surgery though. I have migrains every now and then but nothing like (it sounds like) you have!

    I hope everything gets better for you!

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  • I’m so sorry you have to go through this. THINKING OF YOU and wishing you PEACE! XOXO

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  • Your faded-orange dots are what I have learned to call a “normalized deficiency”. I have lots of those – they are items that have needed correction or work for so long that I have ceased to notice them any more. At first, when something is put in the middle of the room as an obstacle to remind to do something it sticks out like a sore thumb. Eventually though, I don’t even notice it anymore. The corollary to this is that “nothing is temporary” in the sense that patching something up temporarily is in all odds going to be more or less permanent because I will intend to do a better job later until I no longer notice this new “normalized deficiency”.

    Now, the good news, by your inventory of orange dots you are not allowing the deficiencies to become “normalized” and accepted.

    I think the next step is to prioritize those dots. Given that some will likely sit and fade anyway, which ones are truly important in a time and energy limited world?

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  • Thinking of you, Katie. Always.

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  • Being able to point out those orange dots makes you pretty awesome, you know that? Things will get better; just take it all a little at a time, step by step.

    I also want to say that your husband should be able to pick up the slack. You would do the same if it were the other way around, so don’t feel guilty!

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  • Jodi:

    It’s Sunday night and I wanted to see how you were doing. I think about you often since I am in chronic pain due to the severity of my migraine headaches. You know my story and how many decades I have been in chronic pain so I won’t go into it here. When is the next double blood patch? I hope soon enough where you can have it done, rest and make it back to school a new person. Your attitude is inspiring. I am so glad you will get some (maybe a lot) of Versed for the procedure. That’s nice of them. Could they go one step above and do twilight? Then instead of loving Versed and cake you can love Twilight and cake. I sure hope this is the answer to your HORRIBLE pain. I will pray it is and this will be the end of your suffering. Take care!

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About the Brain
Welcome! I'm Katie, a 27 year old, full-time graduate student who just happened to have brain surgery in November of 2007 to give my ginormous brain a little more space. This blog chronicles my daily life, from relentless headaches to falling over in public to being a doctor's wife. Sit down, get comfortable and stay for a while.
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Questions? Concerns? Don't hesitate to email: overflowingbrain@gmail.com
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