Keep on turning
Last Friday, the world spun around me. It was one of those truly awful experiences that is burned into my mind forever.
Since then, it has become my life. It has become normal. Just another thing on the list. Sitting in class each day, I’ve come to expect the world to spin. I’ve come to expect the feeling of gravity dropping. The feeling of being totally out of control in my own head.
I’m lucky that the racing heart has stopped, because there’s a real limit to what I can handle and we’re dangerously close to pushing it.
I know that I should call my neurosurgeon, or the worthless neurologist, but I’m waiting, for a couple of different reasons.
I have had a cold that became a sinus infection since early last week and it just won’t quite go away. I woke up today with even more congestion than yesterday, so I’m not sure which side of this cold I’m on. Since I know that congestion can lead to dizziness, I want to wait that out, just in case. I’d hate to waste time for come regular old sinus or ear pressure.
But more than that, I just don’t feel like being poked, prodded or tested more. I did a little research and found that unsurprisingly, low csf pressure can cause dizziness. I’ve had some before, but this feels different. It feels constant. It feels shitty.
And if I’m being perfectly honest, I also fear that the neurosurgeon will tell me what I don’t want to hear. I’m afraid he’s going to say that there’s nothing he can do. He’s alluded to it before, but I don’t know if I can hear that. I don’t know if I can face that reality yet.
In the back of my head I know I’ll have to, and probably soon, but not yet.
And so I’m giving myself until the end of the week. I’m waiting for my sinuses to clear, for my mind to clear, to see if this weekend away makes any difference, for better or for worse, before taking the next step. Before making the next call.
Before asking for help again. And before facing the possibility of not being able to receive any.
Welcome! I'm Katie, a 27 year old, full-time graduate student who just happened to have brain surgery in November of 2007 to give my ginormous brain a little more space. This blog chronicles my daily life, from relentless headaches to falling over in public to being a doctor's wife. Sit down, get comfortable and stay for a while.





Don’t wait too long to call if it doesn’t get better. Praying for you daily. HUGS
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I am currently also suffering from Vertigo (the technical term for holy crap where did the floor go *fall*) and my hospital trip(s) to confirm diagnoses consisted of pushing me off things backwards (eye lag) after which I threw up and passed out (avoid this if you can, it was the worst thing I have ever experienced and it would no doubt be a million times worse for you) all for them to tell me it was ‘post-viral vertigo’ caused from my cold… No real treatment, no real threat either. I hope this is what you have and that it goes away soon without a trip to the dr. Gravel may make the dizziness better if you can take it. I truly hope you catch a break soon and something starts to feel better!!! I am sending good healing stable vibes your way!
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Are you really going to Mardi Gras? Seriously?
This just seems like such a poor choice given the following…
1) You say you’re mired in off the charts pain, the likes of which no pain sufferer has ever withstood and lived to tell about it. Let’s don’t forget the dizziness, elevated heart rate, and/or the sinus infection (and whatever else you have going on that I missed because I can barely stand to read your posts anymore). Yet you feel up to air travel? And Mardi Gras?!
2) You’re likely about to be asked to leave your program because you don’t recognize you’re in over your head. Yet you are going to NOLA, for a party that falls on a Tuesday?
Katie, please understand, I like you, but you don’t make any fucking sense.
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Katie Reply:
February 11th, 2010 at 4:02 pm
I appreciate your input, but understand that you simply do not know the entire story.
1) I am in pain, but that doesn’t mean that I don’t do things. I am still going to have to live my life to the best of my ability. And that means being in pain in an airplane and in a different state. I checked with all my doctors before doing this and yea, I’m pretty worried about it. So thanks for pointing out all the shit that could go wrong.
2) I’m not going to be asked to leave my program. And for the record, I absolutely know that I’m in over my head. I also know that I have Monday off school and that Mardi Gras isn’t a one day party. Moreover, I will be back to California Monday night, so I’m not missing a single class on this trip.
I appreciate your suggestions, but you’re making assumptions about me that aren’t correct. There are only about 100 different ways that you could’ve said all of that without being a jerk, and I can only imagine that if you cared and were doing it to be thoughtful, you would’ve.
And if you can barely stand to read my posts, then don’t. It is, as usual, voluntary for you to be here.
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Shana McQueen Reply:
February 11th, 2010 at 4:40 pm
I really wanna get all Jersey on this fucker and put ‘em in a trunk or something. Fucktard.
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Kathy Reply:
February 11th, 2010 at 8:57 pm
Can I help?!!!
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Deanie Reply:
February 13th, 2010 at 5:22 am
Ok, this comment was really stupid. Grow the fuck up!!!!!!
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In spite of all that you are enduring, may your time in New Orleans be full of laughter, fun and healing of heart and soul!
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Hi Hun.
When I get sinus infections and/or ear infections, my balance goes batshit… I get dizzy, wobbley, and I SWEAR I can even feel the congestion IN my Chiari incision site. (Deeming the fact I have Chronic Sinusitis and almost always have fluid in my ears, my balance has been CRAP for EVER!)
I dont have a lot of advice, but I know (sort of) how you feel, and you’re in my thoughts. I hope you get SOME relief from all the bullshit soon…
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People who think Mardi Gras is a one-day party on a Tuesday involving lots of nudity make me snicker.
We can’t wait to have you here again! Sometimes the best thing is some time away, where you can relax a little. We’ll be like a spa retreat. With beads (no nudity required, see above for snickering). And cake. And tasty foods. Also ice cream. Yay!
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I think you are a badass!
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You’re strong enough and smart enough. This wave isn’t gonna drown you.
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Live. Live how you need to find your happiness.
Have an awesome time in New Orleans!! I am jealous! This is probably the number one spot in the USA that I want to visit.
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