Third time’s the charm

I love how life likes to taunt me. Every night since Saturday, I have thought to myself, today I experienced the worst pain I’ve ever had. Surely it’ll get better tomorrow. And so far? that has not once been the case.

I had a 10:15 appointment for a physical today. This physical was to make sure that I was fit to have my own blood shot into my own back. The concept escaped me completely, but for pain relief I was more than willing to jump through any and all hoops necessary. Especially since the neurosurgeon’s nurse had called me at 8 in the morning to say that they could do the blood patch on Thursday instead of Friday if and only if the entire physical, including the bloodwork, was done and faxed to their office by 4.

No pressure (ha, no pun intended).

Of course I knew that getting a physical today was going to be a challenge, what with standing up being the instigator of almost immediate pain. But I had no idea. When I got to the office, just sitting in the waiting room was awful. Getting my blood pressure taken, was horrific (and for proof? My blood pressure, normally no higher than 95/60 was 110/80. Um, yea. PAIN). I finally got to lay down on the exam table, but the relief was short lived.

This physical was not what I had envisioned. I assumed it was listening to heart and lungs, poking the belly and a few blood tests. Um, no. Fail. It was a 12 lead EKG, a chest x-ray, lots of blood work and the listening and poking. In all, it took 2 hours upright to get it all done. At the end, I honestly thought I might pass out from the pain. As I laid on a cement curb waiting for my mom to drive the car up, I wondered if I would even make it through the 30 mile ride home.

I did. But when I tell you that I’ve never felt pain like that before, I’m not exaggerating. It was nothing short of torturous. It was the deepest, darkest circle of hell.

I got home, took drugs and laid on the couch, afraid to move a muscle. The pain eased, I was finally able to eat something and things were looking up. The morning was awful, but the end was in sight. Relief was in sight.

And then at 3:30, the neurosurgeon’s office called. They had everything…except the one thing they really had to have. The bloodwork. You know, that part that told them if my blood would even clot enough to make this work at all.

So I called my primary care doctor’s office to find out if they had it, they didn’t know. They would call me back. The time flew by. 3:35. 3:40. 3:55. Finally I called back and they said they’d really check this time (um, don’t even get me started here).

At 4:15 I got a call that my bloodwork was done, they would fax it right that instant. I quickly called the neurosurgeon’s office to tell them. No one answered. Not the nurse. Not the nurse practitioner. Not the receptionist even. I was crushed. I had suffered for hours for nothing. They had told me this morning that if the patch couldn’t be done on Thursday, they weren’t sure when it could be done.

I was devastated.

At 4:30, I got a call. My caller ID showed that it was the hospital and the man introduced himself as the interventional radiology department’s appointment scheduler. I braced myself for the worst, knowing I’d missed the deadline and not knowing when they might have scheduled the blood patch for.

And then, it finally happened. I caught a break.

Tomorrow at 2pm, I will get a blood patch done by my neurosurgeon (this is important because my neurosurgeon is literally like THE MAN who studies and pioneers better blood patches. He’s published articles upon articles about high volume patches and how effective they are).

I will have to fast all day (if you see me tomorrow, turn around and run the other way. I’m a little like The Hulk. You won’t like me when I’m hungry) and it will probably hurt like hell (you know, what with the other two big holes in my back already), but it might fix this pain.

It might mean that tomorrow is the last day where I am afraid to get up and pee or where I have to ask my mom to pour my Diet Coke into a cup with a lid so I can sip it lying down.

We will trek the 50 miles tomorrow to the very same hospital I have been admitted into for the past two Fridays, and I will have the 3rd needle shoved into my spine this week.

And I will pray that this one, this third one, is finally the charm.

13 Responses to “Third time’s the charm”

  • god, I hope it works, sweetheart

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  • Keeping my fingers crossed, sending you positive thoughts, and thinking of you.

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  • Beth:

    We’re sending you the power of the Katie with all the strength we can muster. I’m hopeful.

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  • Praying here too for you. Good luck.

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  • Joy:

    gawd. I hope like hell that this finally, FINALLY!, works for you. But, you are so strong to still be fighting like this. You are awesome. :)

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  • Gosh, I really, really hope that this patch-thing works for you. Why do some people have to suffer so much? Thinking of you!

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  • Hoping that the third time really is the charm for you. I cannot imagine the pain that you’re in, hope it gets better soon!

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  • Good luck with the procedure. I could say that I know your pain…but I don’t.
    But,
    You won’t like me when I’m hungry

    at least your sense of humor is still in tact.

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  • Oh my, you are in my thoughts and prayers. Sending you happy good thoughts that it helps a TON tomorrow, because girl you so deserve to be pain free!!!!

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  • I’m praying that this works for you and your pain goes away .

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  • Flea:

    I’m crying for you, Katie. And I’ll be praying for you.

    [Reply]

  • Sue G:

    Read on your Twitter stream that the procedure is over, your head feels better, but your back hurts. Oh, and that you are in love with Versed (which never works for me…never…glad it worked for you).

    Can’t wait until you are up to blogging again. I’m hoping to hear about the sexual positions that have the neurological seal of approval.

    I live vicariously through you. Just so you know.

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  • I’m so tired of you hurting. If I could have 1 wish right now, this moment. It would be for you to be better. Did you ever listen to Art Bell on the radio? Coast to Coast A.M. Late night. He did these experiments. Hundreds of thousands of listeners all concentrating on a single thing at the same time. Mass communal psychic concetration. I felt stupid but i did one of them. I was driving all night, listening to the radio to stay awake, and I bought in. The communal thought was for rain in a parched spot in Texas. It rained. ALOT, too much rain. I was shocked. Should we try it? I believe in the supernatural, hell, have you ever played with magnets. Powerful, unseen forces. What do we/you have to lose? A single moment in time when thousands concentrate on one thing,,,, you. I’m in. Anybody else?

    [Reply]

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About the Brain
Welcome! I'm Katie, a 27 year old, full-time graduate student who just happened to have brain surgery in November of 2007 to give my ginormous brain a little more space. This blog chronicles my daily life, from relentless headaches to falling over in public to being a doctor's wife. Sit down, get comfortable and stay for a while.
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Questions? Concerns? Don't hesitate to email: overflowingbrain@gmail.com
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