Comments on: The end of the line http://overflowingbrain.com/2009/12/02/the-end-of-the-line/ Witnessing absurdity since 1983. With room for crazy since 2007. Tue, 22 May 2012 12:24:31 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Sam http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5217 Sam Sun, 06 Dec 2009 09:38:21 +0000 http://overflowingbrain.com/?p=1825#comment-5217 Couldn't have said it better myself KT. You hang in there dudette. There will be an answer. Couldn’t have said it better myself KT. You hang in there dudette. There will be an answer.

]]> By: KT http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5216 KT Fri, 04 Dec 2009 05:56:14 +0000 http://overflowingbrain.com/?p=1825#comment-5216 I am so sorry for your suffering and despair. Like the above poster, I really think you could benefit from a GOOD chronic pain management program WHILE continuing to search for answers and solutions. Like you said yourself, cisternograms have a HIGH FALSE NEGATIVE rate. This is NOT the end of the road. Keep pushing until you have an explanation for the low CSF pressure and protein. You DO have something wrong. You DO have a doctor behind you, wanting to search with you....but she is human and it may take time. You DO have MANY people behind you, supporting you, loving you. You HAVE enriched many lives by sharing yours. HANG in THERE. Through the haze of pain and sorrow, FEEL the hands holding you up. Sending you Courage and Strength from a long-time lurker, never commenter, doctor, sister of a chronic pain-sufferer whose heart breaks for you. I am so sorry for your suffering and despair.

Like the above poster, I really think you could benefit from a GOOD chronic pain management program WHILE continuing to search for answers and solutions.

Like you said yourself, cisternograms have a HIGH FALSE NEGATIVE rate.

This is NOT the end of the road.

Keep pushing until you have an explanation for the low CSF pressure and protein.

You DO have something wrong.

You DO have a doctor behind you, wanting to search with you….but she is human and it may take time.

You DO have MANY people behind you, supporting you, loving you.

You HAVE enriched many lives by sharing yours.

HANG in THERE.

Through the haze of pain and sorrow, FEEL the hands holding you up.

Sending you Courage and Strength from a long-time lurker, never commenter, doctor, sister of a chronic pain-sufferer whose heart breaks for you.

]]> By: Lauren http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5215 Lauren Thu, 03 Dec 2009 22:22:56 +0000 http://overflowingbrain.com/?p=1825#comment-5215 Ugh. I am so sorry. There has to be an answer, and your doctors should be committed to finding it for you. This is not acceptable. Hugs. Ugh. I am so sorry. There has to be an answer, and your doctors should be committed to finding it for you. This is not acceptable.

Hugs.

]]> By: Beverly http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5214 Beverly Thu, 03 Dec 2009 19:58:18 +0000 http://overflowingbrain.com/?p=1825#comment-5214 I'm so sorry for this chronic pain that you've been experiencing. I'm so sorry that you aren't getting answers. There has to be an answer. Are you able to seek second opinions with your insurance? I’m so sorry for this chronic pain that you’ve been experiencing. I’m so sorry that you aren’t getting answers. There has to be an answer.

Are you able to seek second opinions with your insurance?

]]> By: alice http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5213 alice Thu, 03 Dec 2009 14:10:07 +0000 http://overflowingbrain.com/?p=1825#comment-5213 I still hope for you. I still hope for you.

]]> By: Sara @heartmychloe http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5212 Sara @heartmychloe Thu, 03 Dec 2009 05:47:36 +0000 http://overflowingbrain.com/?p=1825#comment-5212 you poor thing. i wish i could make some of this go away. since they cant find out what is wrong, i hope the doctors can at least alleviate some of your pain. hugs you poor thing. i wish i could make some of this go away. since they cant find out what is wrong, i hope the doctors can at least alleviate some of your pain.

hugs

]]> By: stephen http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5211 stephen Thu, 03 Dec 2009 03:52:38 +0000 http://overflowingbrain.com/?p=1825#comment-5211 Some day. Some day, you won't hurt. I believe that. I just want you to feel it not hurting. I want you to exhale the breath you've been holding against the pain, and feel it's absence. I'm not a neurologist, nor an amateur faith healer. But I am an optimist. Some day. Soon. steve Some day. Some day, you won’t hurt. I believe that. I just want you to feel it not hurting. I want you to exhale the breath you’ve been holding against the pain, and feel it’s absence. I’m not a neurologist, nor an amateur faith healer. But I am an optimist. Some day. Soon. steve

]]> By: Beth http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5210 Beth Thu, 03 Dec 2009 03:27:58 +0000 http://overflowingbrain.com/?p=1825#comment-5210 I'm with Heather. I'm so angry on your behalf. This is not normal. This is not the way it should be. There has to be another road if this one has led to a dead end. We're praying for you, sweetie. Take time; grieve; breathe. We'll be here when you're ready. I’m with Heather. I’m so angry on your behalf. This is not normal. This is not the way it should be. There has to be another road if this one has led to a dead end.

We’re praying for you, sweetie. Take time; grieve; breathe. We’ll be here when you’re ready.

]]> By: robinbondhus http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5209 robinbondhus Thu, 03 Dec 2009 03:09:39 +0000 http://overflowingbrain.com/?p=1825#comment-5209 I am so sorry for what you are going through pain is not fun 4 years ago i became very ill having severe head pain .I went to the doctor several times real sick. week after week lucky my doctor kept doing test. I was diagnosed with lyme disease. and i do not camp never seen rash. I HOPE THEY WILL FIND OUT WHAT IS Wrong pain is a indication of something .Good luck. I am so sorry for what you are going through pain is not fun 4 years ago i became very ill having severe head pain .I went to the doctor several times real sick. week after week lucky my doctor kept doing test. I was diagnosed with lyme disease. and i do not camp never seen rash. I HOPE THEY WILL FIND OUT WHAT IS Wrong pain is a indication of something .Good luck.

]]> By: Michael @badassdadblog http://overflowingbrain.com/2009/12/02/the-end-of-the-line/comment-page-1/#comment-5208 Michael @badassdadblog Thu, 03 Dec 2009 02:56:04 +0000 http://overflowingbrain.com/?p=1825#comment-5208 I'm sorry. I won't tell you things will be ok. I don't know if they will. I'll just say I'm sorry, and I hope things improve, and I hope your life becomes one you love and want to live. I hope. I’m sorry.

I won’t tell you things will be ok. I don’t know if they will.

I’ll just say I’m sorry, and I hope things improve, and I hope your life becomes one you love and want to live.

I hope.

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